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hdaniel05
10+ Posts = Bronze
Joined: 12 Dec 2009
Posts: 24
Location: Halifax County, Virginia
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 Posted: Sat Apr 24, 2010 6:15 pm Post subject: |
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| Heather: mom to Kendal, 2 1/2-del+ |
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Juancangas
Joined: 04 May 2010
Posts: 1
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| Posted: Sun May 30, 2010 6:09 am Post subject: |
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I´m Juan - Manuel´s fathter - 21 moths all.
Pontevedra - Cangas - Spain |
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johnark
50+ Posts = Gold
Joined: 11 May 2010
Posts: 52
Location: Little Ferry, New Jersey, USA
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| Posted: Sun May 30, 2010 7:25 am Post subject: |
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Hi!
my name - Jeeyoon
husband - jeff
son: Patrick (Del +) DoB: 4/1/2009
diagnosed 4/26/2010
We are in NJ, USA! |
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JCC2010
Joined: 03 Jun 2010
Posts: 6
Location: Minnesota
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| Posted: Mon Jun 07, 2010 2:13 am Post subject: |
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Crystal-Mom of Cameron (del +) 11 months old.
We live in Silver Lake, MN
_________________
Crystal, Cameron (11 months) |
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alison2
50+ Posts = Gold
Joined: 12 Nov 2009
Posts: 74
Location: North East ,England
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| Posted: Thu Jun 10, 2010 7:36 am Post subject: |
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| Alison Bogg mum to Abi 5y(AS del) Katie 3y. Darlington uk. |
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DoubleTrouble
10+ Posts = Bronze
Joined: 01 Oct 2007
Posts: 21
Location: Kinninvie.England
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| Posted: Mon Jun 14, 2010 1:34 am Post subject: |
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| alison2 wrote: | | Alison Bogg mum to Abi 5y(AS del) Katie 3y. Darlington uk. |
Hi Alison.
Our boys went to school in Darlington(Beaumont Hill).
I am originally from there and we now live 15 miles away in Kinninvie.
_________________
Bob,Stepdad of Joe and James(22).Identical twins with an imprinting defect.
Joe(front) and James with mum. |
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alison2
50+ Posts = Gold
Joined: 12 Nov 2009
Posts: 74
Location: North East ,England
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| Posted: Tue Jun 22, 2010 3:59 am Post subject: |
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Hiya,
What a small world it is sometimes!!!!!!!!!!!!!!!!!!!!!!!!!! |
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heatherash
Joined: 25 Jun 2010
Posts: 1
Location: Spanish Fork UT
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| Posted: Fri Jun 25, 2010 12:32 am Post subject: AS in Utah |
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| I am in Palmyra Utah (a county community of Spanish Fork) Our 10 year old daughter Emma is likely AS. We had one of the gene tests done at 18 months of age come back negative for AS. It wasn't until a severe seizure in June 2007 that AS was brought up as a likely DX. At that point I researched it out and we firmly believe this is what she has. We have no insurance and since the first test was $500.00 (8 years ago) we have not pursued further testing at this point. I would LOVE to find other families in Utah afflicted with AS, to talk to. |
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JasonAngel05
Joined: 29 Sep 2010
Posts: 4
Location: Hudson, NH
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| Posted: Thu Sep 30, 2010 1:19 am Post subject: |
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Hi, I'm Christine and my husband is Pete.
Our son Jason is 3 1/2 and has AS - ICD.
We live in Hudson, NH
Always looking to meet people in our area!!! |
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tarahenery
Joined: 13 Oct 2010
Posts: 2
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| Posted: Wed Oct 13, 2010 8:00 am Post subject: Mom with an angel |
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We live in Port Townsend Washington, 2 hours west of Seattle. We have a son, Simon, age 5, deletion positive. He has two brothers, Matthew age 8 and Jameson age 2. Simon was diagnosed with Angelmans when he was 8 months old. We would love to be in contact with a family who has a son arouns Simon's age or a few years older. If you are interested, please contact us.
Matthew & Tara Henery[/img] |
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freshflowers
100+ Posts = Platinum
Joined: 12 Apr 2006
Posts: 170
Location: Miami, Florida
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| Posted: Wed Oct 27, 2010 1:44 am Post subject: Location |
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Hi all,
I am in Miami, Florida. I haven't been on in a while but I hope everyone is well. If anyone is in this area let me know.
Jodi |
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stroi19
Joined: 12 Dec 2008
Posts: 4
Location: moscow
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Angels dad
10+ Posts = Bronze
Joined: 13 Nov 2010
Posts: 22
Location: Adelaide , South Australia
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| Posted: Tue Nov 23, 2010 9:41 pm Post subject: where does your angel live |
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Hi im craig (angels dad)
We live in adelaide south australia , Kristy is our nearly 15 year old Angel. |
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pam m
Joined: 17 May 2005
Posts: 5
Location: Accrington, england
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| Posted: Fri Jan 28, 2011 1:22 am Post subject: |
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Hi im Pam, Matty is my son, hes has AS, is 16 years old. he was diagnosed at about 15 months old.
We live in Acrrington, Lancashire UK about 20 miles north of Manchester!
He is my only child so therefore thinks he is god in our house  My partner has 2 kids, 17 and 19, Matty hates it when they come and steal his attention!!
He has a fantastic personality, i just wish he spoke. Loves life and is a joy to be around. |
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ejni
50+ Posts = Gold
Joined: 18 Jan 2006
Posts: 89
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| Posted: Tue Feb 01, 2011 1:22 pm Post subject: |
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I can't remember if i replied to this or not...
Eric & Narelle
Mum & Dad to Bethany 11 (AS) and William 9
Burnie, Tasmania, Australia |
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newson
10+ Posts = Bronze
Joined: 15 May 2011
Posts: 18
Location: east sussex england
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| Posted: Thu May 26, 2011 6:34 am Post subject: where does your angel live |
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my name is helen neilson mum to zac who is 7( AS) i have 4 other children Daniel 23 Georgia 20 Victoria 18 and Catherine 14
East Sussex England  |
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Abdullah1
10+ Posts = Bronze
Joined: 03 May 2011
Posts: 10
Location: South Africa
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| Posted: Mon May 30, 2011 8:05 am Post subject: |
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| My name is Samira and i live in Cape Town South Africa. I have 4 children of whom Abdullah, my son, now 9, has AS. My other three children are Istikhaar (21), a boy, Aalyah (11) a girl and Fadila (6) also a little girl but who i think has all the qualities of being capable of looking after her little brother. |
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Ccduarte
Joined: 08 Jun 2011
Posts: 8
Location: Lisboa, Portugal
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| Posted: Wed Jun 08, 2011 9:55 am Post subject: Anyone else from Portugal? |
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Hi!
I'm Catarina and my son Pedro has AS. He is now 16 months old and we live in Lisboa, Portugal.
Anyone from here?
Regards
Catarina |
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Abdullah1
10+ Posts = Bronze
Joined: 03 May 2011
Posts: 10
Location: South Africa
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| Posted: Thu Jun 09, 2011 7:43 am Post subject: Re: WHERE DOES YOUR ANGEL LIVE? |
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| AngelMommy wrote: | I thought it would be nice for networking, if we could list out city and state. This way, parents can find a way to contact those close to us, and hopefully even find someone in the same city! So I will get started:
1. Cristen West, mother of Darious West, 6 years old.
LOCATION: FORT WAYNE, IN |
Hi Cristen, I think this is a great idea! I am Samira Adams, mother of Abdullah 9 years old.
LOCATION: Cape Town, South Africa |
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peta perrie
Joined: 15 Apr 2010
Posts: 2
Location: south australia
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| Posted: Wed Jul 27, 2011 2:10 pm Post subject: locations |
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Peta Perrie mother of Mia age 4 years old
Goolwa, South Australia |
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