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frostcowglrl
Joined: 25 Oct 2007 Posts: 4 Location: North Carolina
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Posted: Tue Oct 30, 2007 9:41 am Post subject: |
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Just the other day I was looking at profiles to find someone in my neck of the woods to email with some questions for my son who may possibly have AS.
Dena-Mother of a
possible angel-Mark-14 years old
Charlotte, North Carolina |
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Peanut 10+ Posts = Bronze
Joined: 28 Oct 2007 Posts: 20
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Posted: Tue Oct 30, 2007 10:55 am Post subject: |
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Liszz (me), Brian (DH), Sydney (DD 6) and Reece (DD 4)(AS?)
Brampton, Ontario, Canada. |
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maddieourangel
Joined: 22 Oct 2007 Posts: 4
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Posted: Sun Nov 04, 2007 11:52 am Post subject: where we live |
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Hi,
Our angel Madison-
Hanson,MA
Julia & Frank
awaiting diagnosis |
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Tracey\Carlie-ann
Joined: 02 Nov 2007 Posts: 1 Location: Mission, B.C. Canada
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Posted: Mon Nov 05, 2007 9:32 am Post subject: |
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My name is Tracey and I have a 5yr old daughter named Carlie-ann and she was diagnosed with Angelman's in 2003.
We live in Mission, B.C. Canada. _________________ my name is Tracey and I have 5yr old daughter with Angelman's. I am a new member looking for some advice |
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littlemisscurious 50+ Posts = Gold
Joined: 23 Oct 2007 Posts: 58 Location: Ireland
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Posted: Fri Nov 23, 2007 11:35 pm Post subject: |
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Eabha (Ava) 16 moths deletion positive
Dublin Ireland |
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Jesikasmom 50+ Posts = Gold
Joined: 23 Oct 2007 Posts: 63 Location: Calgary, Alberta
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Posted: Sat Nov 24, 2007 7:26 am Post subject: |
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Hi...Im Jenn...Mom to Aiden....almost 4yrs...and Jesika...our angel....who is 21 months...and Donnies proud wife...and we live in Calgary Alberta Canada!! _________________ Jenn
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SnuggleBear69 10+ Posts = Bronze
Joined: 30 Nov 2007 Posts: 22 Location: Campbellton, New Brunswick
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Posted: Sat Dec 01, 2007 5:44 am Post subject: |
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My son is just turning 2 and The doctors told me just yesturday that he has Angelman Syndrome. I would like to talk to other parents that are dealing with this also and this is the perfect site to do so. I am trying to find someone from around where i live but i am not to sure if there is any. I am from Campbellton New brunswick Canada. I am willing to connect with other parents on this site and find some way to help my son a raise money for this syndrome i no there is no cure but we can still do the best we can and help out anyway we can. If anyone is willing to talk or make friends you can always send me a message my user name is Snugglebear69 i would appreciate to know some people who is going through what i am.
Thank you very much[/b] |
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myangels 50+ Posts = Gold
Joined: 15 Jul 2005 Posts: 94
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Posted: Sat Dec 08, 2007 1:08 pm Post subject: |
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Rocky 6 years old, Angie 10 years old and Amanda 16 years old, they have the ube3a mutation
Rocky and kathy (dad and mom) we live in Warren, MI |
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kellybaynton 10+ Posts = Bronze
Joined: 08 Dec 2007 Posts: 13 Location: brantford ontario canada
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Posted: Tue Dec 11, 2007 1:55 am Post subject: |
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| Jay and Kelly Baynton our son Is Jayson he is almost 21 yrs old in Jan we currantly live in Brantford Ontario Canada. |
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Logansmum 25+ Posts = Silver
Joined: 21 Dec 2007 Posts: 30 Location: Ballywalter, Northern Ireland
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Posted: Sun Jan 06, 2008 1:08 am Post subject: |
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Abby and Graeme.
Ballywalter, County Down. Northern Ireland
parents of Logan aged 17 months. |
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SnuggleBear69 10+ Posts = Bronze
Joined: 30 Nov 2007 Posts: 22 Location: Campbellton, New Brunswick
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Posted: Sun Jan 06, 2008 2:57 am Post subject: Yes it would be nice |
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Hello everyone,
Your right it would be nice for people to write down there place and city this way we might be able to find someone in the area we live or at least close by. I know that i am not going to find anyone in here from Campbellton but if there is someone close then i would really love to know.
Aliesha Joshua's Mom ( 2 years old )
Location is Campbellton, New Brunswick |
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Helen Hearps 10+ Posts = Bronze
Joined: 17 Apr 2006 Posts: 23 Location: Launceston. Tasmania
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Posted: Sun Jan 06, 2008 2:40 pm Post subject: Location |
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Helen, mother of Sheridan, who is 31. Lives in Launceston, Tasmania, Australia. _________________ Mother of Sheridan, who is 29 yrs. of age, is maternal deletion and has albinism. Lives in a group home and is very happy. |
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csharma2809 10+ Posts = Bronze
Joined: 13 Jun 2007 Posts: 16 Location: New Jersey
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Posted: Tue Jan 08, 2008 7:37 am Post subject: New Jersey |
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We live in central New Jersey!
Catherine and Kapil (parents to Asiya, 3)
deletion positive |
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bethesda54
Joined: 04 Jan 2006 Posts: 7 Location: Oxnard, CA
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Posted: Mon Jan 14, 2008 5:22 am Post subject: |
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We live in Oxnard, California (Southern) between Los Angeles and Santa Barbara.
Candy Bryant, Grandma to beautiful Emma, DOB 11/23/03, Del +, Diagnosed 9/28/04 _________________ Candy Bryant
Grandma to Emma, DOB 11/23/03, Del+ |
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carathomas24 10+ Posts = Bronze
Joined: 12 Jan 2008 Posts: 10
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Posted: Sun Jan 20, 2008 6:00 am Post subject: location |
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Cara Thomas Barry Thomas
mom and dad of Jadyn age 5 yrs
Peru,Indiana |
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Mum2Philip 100+ Posts = Platinum
Joined: 05 Jan 2008 Posts: 222 Location: Dublin Ireland
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Posted: Mon Jan 21, 2008 11:15 am Post subject: Location |
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We live in Dublin, Ireland
Rosemary and Nigel
parents of Philip aged 18 AS deletion |
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Liz B 50+ Posts = Gold
Joined: 18 Jan 2008 Posts: 72 Location: Portland, Oregon
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Posted: Mon Jan 21, 2008 3:39 pm Post subject: |
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Liz mom to Audrey (age 2.75)
Portland, OR |
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bizzylizzie 50+ Posts = Gold
Joined: 12 Dec 2007 Posts: 73 Location: Riddells Creek, Vic, Australia
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Posted: Tue Feb 12, 2008 8:58 am Post subject: |
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Darren and Liz
Cameron 5yrs
Shae 2.75yrs clinical AS
We live in Riddells Creek, Melbourne, Aus _________________ Liz, mum to...
Cameron 2/11/02
Shae del+, 27/5/05
'We have learnt that Shae's abilities are endless, the disability is only a small part of who she is' |
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jowill4
Joined: 04 Feb 2008 Posts: 7 Location: Orange,Ca.
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Posted: Tue Feb 12, 2008 2:27 pm Post subject: |
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Joleen Mom to Zachary del+ 8yrs old and Britt 16
Orange Co. California  |
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kiano's mommy 10+ Posts = Bronze
Joined: 12 Feb 2008 Posts: 17
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Posted: Fri Feb 15, 2008 6:10 am Post subject: |
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LIVINGSTON, TX
Are there not anymore of you from Texas? I'd love to find a doctor with some AS experience, but it doesn't look like there's any AS children even close to us
2yr old son, still waiting on testing
Kelly |
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